Resources

Governmental and Health Care Organizations

Here are some links to governmental and health care entities that may be helpful to CCS patients.

Alameda Alliance for Health
Anthem Blue Cross Medi-Cal
Medi-Cal

Children’s Medical Services
Social Security

Diagnosis

American Academy of Cerebral Palsy and Developmental Medicine
Charcot-Marie-Tooth Association
Muscular Dystrophy Association
Spinal Cord Network – San Francisco Bay Area
United Brachial Plexus Network
United Cerebral Palsy

Bay Area Services

Ability Now Bay Area

Provides services to persons with developmental disabilities.

Alta Bates Disabled Community Health Clinic

Offers people recovering from chronic conditions a place to get to get unique needs met in conjunction with primary care physician.

Bay Area Outreach and Recreation Program

Advances the lives of people with physical disabilities through sports and recreational activities.

California Department of Rehabilitation

An employment and independent living resource for people with disabilities.

Center for Independent Living

National leader for helping people with disabilities live independently and become fully participating members of society.

CoachArt

Arts and athletic coaching for families affected by childhood chronic illness.

Community Resources for Independent Living

Peer based disability organization that advocates and provides resources for people with disabilities to live independently.

Ed Roberts Campus

Universally designed transit oriented campus housing organizations and service providers for individuals with disabilities.

George Mark Children's House

First children's hospice house in the US providing medical, emotional, and practical support to families of children with life-threatening and terminal conditions.

Magical Bridge Foundation

Brings magical bridge playgrounds to Bay Area communities and advocates for inclusive play.

Make a Wish

Grants wishes of children diagnosed with a life-threatening medical condition.

Regional Center of the East Bay

Provides services and supports to individuals with developmental disabilities.

Special Needs Aquatic Program

Provides alternative physical therapy and recreational services for children.

National Organizations

CanChild Centre for Childhood Disability Research

Research center dedicated to generating knowledge and transforming lives of children and youth with developmental conditions and their families.

National Child Traumatic Stress Network

Improves access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events.

Equipment

Ablecloset

A resource for special needs equipment in northern California.

Advocacy/Resources

Disability Rights and Education Defense Fund

A leading national civil rights law and policy center directed by individuals with  disabilities and parents who have children with disabilities.care needs.

Family Resource Navigators

Parent-directed community-based organization that serves families of children with disabilities or special healthcare needs.

Family Voices

Aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.

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